Researchers at the University of Iowa College of Law and the University of Maryland Francis King Carey School of Law have just announced the launch of Genetic Privacy in the US: Insurance and Law Enforcement Use.
The website provides two detailed maps that track state legislation regarding life, long-term care, and disability insurer use of genetic information and law enforcement access to consumer genetic data.
A series of protective features under both the insurance and law enforcement headings show, through comparisons of statutory language, how states succeed or fall short at robustly protecting the privacy of genetic information.
This work builds from prior research by collaborators Anya Prince (ASLME member) and Natalie Ram, who have extensive expertise regarding insurer use of genetic information and law enforcement access to databanks respectively.
This website will be updated annually to reflect legislative changes.
The project was funded by the Greenwall Foundation Bridging Bioethics Research & Policymaking Grant Program and the website was developed with support from the University of Iowa Libraries Digital Scholarship & Publishing Studio.
